https://www.lymedisease.org/2018-lyme-disease-resource-list/

TOUCHED BY LYME: Resources to help you hit the ground running

When you are first learning about Lyme disease, it can be hard to know which way to turn. Here are some links to get you started.

General information
www.lymedisease.org LymeDisease.org gives info about ticks, Lyme disease, co-infections, prevention, risk maps, downloadable brochures, blogs, news and events. If you are wondering if you might have Lyme disease, see our symptom checklist, for a printable PDF you can share with your healthcare provider.

Looking for a Lyme-literate doctor? See our physician directory here.

In addition to its website, LymeDisease.org also publishes a quarterly digital journal, The Lyme Times, free to members. (Click here to join.) We post Lyme-related news on Facebook and Twitter and maintain a network of state-based online support groups. Sign up for our free email newsletters.

MyLymeData is LymeDisease.org’s survey tool that tracks patient progress over time. It allows people to quickly and privately pool information about their Lyme disease experiences. When large amounts of data are combined, we can see patterns that help us determine which treatments work best. Add your Lyme data to MyLymeData to help find a cure for Lyme disease.

ILADS–International Lyme and Associated Diseases Society. Professional organization for doctors who treat Lyme disease. Lyme info, educational videos, downloadable brochures.

LDA–Lyme Disease Association. Lyme information, doctor referral site, annual Lyme scientific conference.

Lyme Disease: The Basics–free PDF of book. Published by the Lyme Disease Association of Southeastern Pennsylvania.

Children and Lyme disease
Basic info about children with Lyme disease

Gestational Lyme disease

Lymeparents online support group

LymeAid4Kids–Financial assistance for Lyme treatment for those under age 21.

Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25.

LivLyme Foundation–Financial grants for children with Lyme disease (under 21).

When Your Child Has Lyme Disease: A Parent’s Survival Guide (book) by Sandra Berenbaum and Dorothy Kupcha Leland.

Healthy Mom Best Prescription for Healthy Baby (The Lyme Times)

PANS/PANDAS
New England PANS/PANDAS Association

PANDAS Network

ACN Latitudes

Moleculera Labs

Ticks
How to protect yourself from ticks

What do you do if you get a tick bite?

TickEncounter Resource Center—University of Rhode Island

Tick testing—There are various places to get ticks tested. Here’s one.

Other Lyme-related symptoms & issues
Lyme carditis and heart block

Lyme disease and cognitive impairments

Gastrointestinal manifestations of Lyme.

Psychiatric manifestations of Lyme.

Lyme and multiple sclerosis

Lyme and Morgellons

Lyme and allodynia

Medical marijuana and Lyme disease

Mold
Lyme and mold

Survivingmold.com

Dealing with Lyme disease and mold illness at the same time

How to donate blood and tissue for Lyme research
Lyme Disease Biobank

Lyme and pets
Basic information about Lyme and pets

Parasite prevalence maps Educational website includes a US map down to the county level, showing where dogs have tested positive for Lyme, anaplasmosis, erhlichiosis and other diseases. Also, information about protecting your pet from tick-borne diseases.

CAPC The Companion Animal Parasite Council has comprehensive information about how to protect your pets from ticks and other parasites.

Books
Lyme: The First Epidemic of Climate Change, by Mary Beth Pfeiffer.

Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease, by Dr. Richard Horowitz.

How can I get better? An Action Plan for Treating Resistant Lyme and Chronic Disease, by Dr. Richard Horowitz.

Conquering Lyme Disease: Science Bridges the Great Divide, by Brian A. Fallon, MD, and Jennifer Sotsky, MD

The Lyme Diet, by Dr. Nicola McFadzean. What to eat while healing from Lyme.

Cure Unknown: Inside the Lyme Epidemic, by Pamela Weintraub.

When Your Child Has Lyme Disease: A Parent’s Survival Guide (book) by Sandra Berenbaum and Dorothy Kupcha Leland.

Film and Video
Under Our Skin, award-winning Lyme documentary film.

Under Our Skin 2: Emergence (sequel)

An archive of Lyme-related news coverage from Fox5NY

Financial assistance:
LymeTAP.com–Lyme Testing Access Program. Financial assistance for Lyme diagnostic testing. (US residents only.)

Needymeds.com–Clearing house for information about various kinds of financial assistance for obtaining medication.

Lymelight Foundation–financial assistance for Lyme treatment for children and young adults through age 25.

Lyme Treatment Foundation–financial assistance for Lyme treatment. No age restrictions.

LivLyme Foundation–Financial grants for children with Lyme disease.

LymeAid4Kids—grants for young Lyme patients (up to age 21).

Ticked Off Foundation—financial grants for Lyme patients over age 26.

Outside of the United States:
Canadian Lyme Disease Foundation

LymeHope (Canada)

Lyme Disease Action (UK)

LymeDiseaseUK

Lyme Disease Association of Australia

Karl McManus Foundation (Australia)

France Lyme

Tick Talk Ireland

Lyme Poland

Association Luxembourgeoise Borréliose de Lyme (Luxembourg)

Onlyme-aktion.org (Germany)

Lymevereniging (Netherlands)

TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s Vice-president and Director of Communications. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org .

Join LymeDisease.org
Related Posts:
TOUCHED BY LYME: Financial assistance for your child with Lyme
TOUCHED BY LYME: New source of financial aid for Lyme patients
TOUCHED BY LYME: A quick introduction to Lyme disease
TOUCHED BY LYME: Need a crash course in Lyme disease? Start here.

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Many Blessings,
CrystalRiver